Showing posts with label Hospital. Show all posts
Showing posts with label Hospital. Show all posts

Friday, 27 June 2014

I have been discharged

Greetings, my friend
Some of my keyboard keys aren't working and it takes effort to get them on my screen
Therefore, I apologise for the awful quality of this post, and possibly a few future ones
Anyway, I have been discharged from hospital on Wednesday
However, I am still not completely well, as I was in hospital so they can make a diagnosis and figure out the treatment
I can take the treatment at home, as long as they monitor me and ensure everything is fine
On to the juicy bit, probably what you have all been waiting for


My diagnosis
It's autoimmune hepatitis- when my immune system over-reacts and attacks my own body 
Auto-immune hepatitis HAS got treatment, but I will most likely be stuck with it for the rest of my life
If I look on the bright side though- at least it's not cancer or an undiscovered disease with no treatment
Yes, autoimmune hepatitis is rare, but it has treatment

Treatment
Steroids and another bunch of medications
Okay, so I HAVE posted before that I have autoimmune hepatitis
I can take the treatment at home as long as I am monitored, I also have a blood test on Monday
I am taking 5 different medicines- here they are with a tiny little review
I wish my keyboard just worked!
  1. Vitamin K- I was also given this in hospital through a cannula already as my blood isn't clotting properly, meaning I couldn't have a liver biopsy either- I will have one, but not just yet; amongst all those pills I'm taking,I'm unsure which one is the Vitamin K
  2. Calcium and Vitamin D- Since steroids can make my bones more fragile and prone to damage, I have been also given Calcium and Vitamin D to help overcome this- it's a lemon flavoured medicine I need to dissolve in water and if I don't drink it fast enough, well- it goes all chalky and gets stuck in my throat- EEW
  3. Stomach-protecting pill- It simply protects my stomach from the steroids, and I find this one so boring I'm not bothered to post any more about it
  4. Multi-vitamin- This is probably to just keep me healthy overall, with pretty much every single Vitamin in there; I checked Even all the B-Vitamins are in there! You can't compete with THAT
  5. Steroids- nasty side-effects as I am currently on a high dose and it can take a while to get to a tiny dose This means I can experience things such as;-
  • Slow growth- I'm tall, so I don't mind too much- for now, anyway
  • Bone weakness- YAY is that my PE exit ticket?
  • Bad mood- Excellent! Just what I need -o-
  • Appetite- I shall gain weight like see if I care
  • A bunch of other stuff that I don't even like
Today's post will be short, but I will try to return to regular posting schedule as soon as I can
ANYWAY
What does this mean for me?
This probably signifies the start of my Summer
WOO-HOO WHEE!
My baby sister is getting baptised tomorrow- I hope to devote tomorrow's entire post to food, celebration and showing you pictures of yummy cake so you all get hungry
Au revoir, merci beaucoup pour regarde mon Blog 
Désolé pour ma Français

Geez, it' shiny

Thursday, 19 June 2014

Moved Hospitals

Hello! ^-^
I wasn't able to come home yesterday, because of my blood test results >.>
I had to move hospitals, and will be staying- I'm not sure how long for.
The hospital is actually quite cool;the wards are much bigger. There used to be 4 beds in my other ward, here there are at least 17. This is both good and bad- good because there's more space but bad because it's harder to find me, more difficult to adjust and more people that means more noise.
The bed doesn't squeak,thankfully. There's a bed so a parent can stay overnight, but the chairs for visitors are a little less comfortable... but at least there's a chair,right? The curtains are easier to move and are blue- I wonder if this is because of the calming nature of the colour?
Security is a little  better- I can lock valuables in my bedside table. Apart from that, it's quite similar. Also, I have my own sink- great because there used to be only one sink per ward. As far as I'm concerned, TV is free and THERE ARE DARN PLAY STATIONS .Even though I never used one, I wonder how much money this hospital has. In terms of conditions, I don't think there is a better one. At both hospitals, the nurses and doctors are extremely friendly and help me to remain calm during tests. It's really similar, so there isn't too much to adjust to ^.^
Anyway, I am supposed to have a biopsy tomorrow. I'm a little frightened, but I hope it goes well. Normally, I'm fine as long as I don't have to feel any of it. I had my left hand cannula removed because it leaked- same thing that happened to my right hand one. So, I had a new one inserted, and this time, I DID FEEL IT. Woah, I'm so abnormally brave. I felt the needle and everything, but hey. Worth it. Medicine didn't sting for now, but I will take extra caution with this cannula (on my right hand, but in a different spot) so it doesn't sting. I had a blood test very early this morning too, and I had cream applied last night. However, by the time I had the test (about 5.30am) the cream wasn't working very well and so I had to feel it. Ouch. I survived though.
I couldn't sleep last night because of the televisions. They were not extremely loud, but I think it would have been much more polite if they turned off the televisions at 9pm as instructed or at least turned them down so I would not have to hear those kids' cartoons. When I was trying to sleep after my blood test, another kid was screaming her head off. I could bear it, but only  just.I wonder if anyone else got woken up, but it was rather unpleasant. If she was getting a painful test, I understand,yes, but I would have benefitted from earplugs.
Anyway, I know I may have been able to post a little better if I was not in hospital, but I'm trying my best. I am stuck for page ideas,but once I have a good idea I'll add it.
Enjoy the Summer sunshine, and if you are in the southern hemisphere, enjoy your winter!
Eating healthy. DONE RIGHT.


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Wednesday, 18 June 2014

Experience in hospital

Hai!
Here's a fish. Take it.

I'm currently staying in hospital. Nope, don't worry,I'm totally okay. I was feeling sick about 2-4 weeks ago on and off and then my toe started to hurt, preventing me from walking. After days off school, I finally got to see a doctor and had a blood test. Nope, no magical numbing cream or anaesthesia. I was positively FRIGHTENED. I managed to survive, and the results arrived the next day. It turned out my liver was just trolling and decided to not function correctly. So, as a result, I stayed in hospital for about 7 hours before being transferred to a ward. I had a cannula inserted, this time with numbing cream, but I didn't know how they worked at the time. If you don't know, a cannula is a bit of plastic inserted into a vein with a needle and attached to some tubes and a valve thing so you can get given medication directly into your vein. I was scared, but after it was over I was much happier. I was transferred to my ward after LOTS of waiting and had to wait to get my things brought from home. So, I stayed overnight. I stayed from Friday and if everything goes well, I may be discharged today.
Here's a list of the highlights!

FOOD! The food is actually quite nice, though not quite the same compared to my mum's homemade meals (I want pancakes!). I didn't have anything to eat for AGES so the first thing I ate was a cheese sandwich and some chocolate mousse. As an avid cereal fan, I ate regular cornflakes every day for breakfast. The drinks really varied, but I mainly had orange juice and milk. Breakfast normally came at around 8am, give or take some time. Lunch came around noon, and hot food was available but I preferred sandwiches (I had a preference for ham or cheese) for lunch. There were also small desserts like fruit bags and yogurt, and sometimes cake. Sometimes, there are other things too. (Like giant cookies) Dinner is around 5-6, and although you can pick sandwiches or hot food, I usually choose hot food at this point. There's also usually small dessert, like cake.

CANNULA I honestly dreaded my medication, one is every 8 hours and another is once a day. I found a pattern lately of the 8 hour medication- 2am,10am,6pm. I hated how the first flush stings- possibly because of the salt in it (but I still sprinkled salt over my dinner because I'm awesome that way) but the stinging got more bearable. It may have hurt because a nurse flushed it- the rest was up to the machine. I was given antibiotics and vitamin K as far as I'm concerned, and it wasn't so bad. Here are techniques I used that work well for calming;

  • Know when the next medicine is coming so you can be prepared.
  • Find something interesting to read or watch on your phone,tablet,book or laptop to take your mind off things. I found it works better for me when the machine is doing it, not so much on the flush.
  • This works for me during the flush- talk to the nurse or look out of the window. Find something to talk about, even sometimes  I just simply say that it stings and it helps.
  • Crucial- DON'T THINK ABOUT WHAT IS HAPPENING. IF YOU THINK IT'S GONNA HURT, WELL, I GOT NEWS FOR YA, IT'S GONNA HURT.Don't think about veins,blood or stinging. Try not to look, either. When I saw my cannula inside my vein... well, I was positively frightened. DON'T.THINK.ABOUT.IT

BED  Most of my day was in bed, and it came with a little control that allowed me to change it a little. For the day, I put the back up so it was a little like a sofa, and the beds are actually quite comfortable.Well, they have to be, if I'm going to stay in them all day.

BLOOD TESTS I totally dreaded those little devils. I had at least 5-10 of them, but even though I am one of the biggest hemophobic people out there, even I have generated tips. The value of experience!
Here you are ^-^

  • Drink water. It helps get your *shudder* blood flowing and opens up your *gulp* veins a little, stay hydrated! Apparently it's good to minimise stress,too.
  • Ask for anaesthesia. Numbing cream stays on for about 30 minutes-1.5 hours, and can actually ELIMINATE the pain! Trust me, it worked. There is also a spray that temporarily freezes the skin. From my experience, it's not as effective as numbing cream and not as effective on its own, but it's instant. It works well in conjunction with the numbing cream and I always have them together as a reinforcing measure.
  • Play a game or read beforehand to calm your mind.Do some Sudoku puzzles, read a good book, play flappy bird or try a puzzle... just stay occupied!
  • Do not look at any of the equipment. See if there is anything in the room to distract you just in case; such as a window, poem or even a spot on the wall.
  • Breathe deeply and count. For example, in for 4,hold for 2, out for 4... it distracts you well!
  • Count! I am often quite worried and tend to count quickly, but as long as you're counting it's okay.
  • Talk to whoever is doing it, I find that an excellent distraction. If you don't want to hear what's going on, SAY SO! I only like to know when it's actually in and when it's out.
  • Relax as much as possible so the blood actually flows. Being tense makes it even worse!
LIFE Well, mainly in bed, really.There's a curtain I usually keep open during the day, and the view is beautiful. I have a bedside table that is normally in front of my bed,and a sofa for visitors which I sometimes use. There is also a TV/Phone thing, then again, only sometimes used.
That's all I can think of for now, what do you think? Have YOU ever stayed in hospital?

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